Since May last year I have been working on this interesting project to co-design a Route Map for  2 specific genetic rare diseases: ALD – Adrenoleukodystrophy and AMN – Adrenomyeloneuropathy.We are now prototyping the Route Map that will be tested soon with patients and NHS relevant professionals. But the first deliverable is now available.If you think this is an interesting project and you would like to know more about the problems and needs of patients and families with these genetic rare…See More

I'm working to design a route map for rares conditions. Diagnosis, information, coordination of care and access to treatment aren't effective.There is a lack of information and little attention on this conditions because they are 'rare'.Is there any experience/papers that you suggest me for my research phase?If you would like to know more about the project, please check out my blog post on www.paolapierri.info and on this network. Thank you!  See More

Exploring the application of design-thinking-driven innovation to care delivery

Group discussing the role of motivation in design and how designers can better support their own motivation and that of their clients and customers.

As someone suggested me, I would like to share with you my last post on social services and 'standards' in designing service encounters, with all the comments I received.I hope you will join this conversation with new feedbacks and insights!Thanks--------------------According to some theoretical background, services encounters can be classified into two categories: standard and relationalones.Generally, in standard service encounters, providers and customers perform according to clearly defined…See More