I'm working to design a route map for rares conditions. Diagnosis, information, coordination of care and access to treatment aren't effective.
There is a lack of information and little attention on this conditions because they are 'rare'.

Is there any experience/papers that you suggest me for my research phase?

If you would like to know more about the project, please check out my blog post on www.paolapierri.info and on this network.


Thank you! 


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